I hope to add a proper contact page, eventually. In the meantime I can be contacted by e-mail:

I can’t reply to any questions from patients about individual cases, sorry. This is because (1) I’m not a doctor and (2) I want to devote my time to setting up this site which is done in my spare time. I finance the site, it does not carry adverts or have any commercial purpose. I intend to keep it strictly non-commercial.

If you want to make suggestions or comments please do. I’m keen to promote the site (it’s useless otherwise) so would be happy to communicate with journalists, patient support groups or research teams.

I hope you find the content useful. Please mention my website on the social media links below!